hailyn saw the genetisist yesterday. shes being tested for (and i doubt my spelling is accurate..) CDG, Rhett's syndrome, and disorders of kreatine. the kretine one wont be done until tuesday but the other two were taken yesterday. the doc is trying to expedite the process as we only have a few months left here & want some answers before we loose our insurance.. on a seperate note, next thursday ill be having some skin cancer biopsies & will be tested for connective tissue disease & lupus. my back pain has spread to most of my body & is very hard to control. ive been showing alot of sensitivites to medications so that along with exhaustion & loss of appetite has nominated me for some fun tests...cant say id even mind having those, i just want to know why i feel like crap everyday!!! luckily i have my sweeties to keep me going.. =] we miss you all! we're planning a spring trip to WI to look for a home & erics new job.. anyone want to take us in for a few days?? hehe =] cant wait to see you all!
this blog is designed for family and friends to keep up with our charming little ones while we're away
Friday, January 21, 2011
hailyn saw the genetisist yesterday. shes being tested for (and i doubt my spelling is accurate..) CDG, Rhett's syndrome, and disorders of kreatine. the kretine one wont be done until tuesday but the other two were taken yesterday. the doc is trying to expedite the process as we only have a few months left here & want some answers before we loose our insurance.. on a seperate note, next thursday ill be having some skin cancer biopsies & will be tested for connective tissue disease & lupus. my back pain has spread to most of my body & is very hard to control. ive been showing alot of sensitivites to medications so that along with exhaustion & loss of appetite has nominated me for some fun tests...cant say id even mind having those, i just want to know why i feel like crap everyday!!! luckily i have my sweeties to keep me going.. =] we miss you all! we're planning a spring trip to WI to look for a home & erics new job.. anyone want to take us in for a few days?? hehe =] cant wait to see you all!
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oh i wish i was there to take you all in!!! we didn't get the headbands in time!!! I was so sad :[ but my friend is forwarding them so they shall be here in no time! Actually, question about the headbands...have you created an esty store and considered selling them...and ahem...would you make a headband for my blog giveaway?!?!? with all credit going to you of course!
ReplyDeletei would love to sell them!! but i dont know how or what an esty store is.. and yes id be happy to make one for your giveaway =]
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