this blog is designed for family and friends to keep up with our charming little ones while we're away
Monday, February 28, 2011
HAILYNS MIRACLE!!!
you guys wont believe it!!!!!! the geneticist called me!!! she figured out what hailyn has!!! after 2 years, 1 month, and 20 days, we finally know! hailyn has disorders of kreatine! the brain needs kreatine && if it doesnt have enough then muscle growth is crippled (her hypotonia) causes seizures, and delays development! it explains everything! the best part?! ITS CURE ABLE!!! the doc said only 5 people in the whole world have ever had this! talk about being original!! she's going to have a blood test to confirm, a brain MRI & then will be given kreatine & then itll all go away! i cant believe this! how incredible! finally we get our miracle!!!!!!!!!
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aw PRAISE GOD! I'm so happy you got an answer!!!
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