wow! this week was chock full of appointments, as was last week!! i have wonderful news that i cant believe i didnt share earlier.. Hailyn and Phenix have both been declared "in the clear" by our nuerologist!! Hailyn will offically be off of her phenobarbitol come next tuesday! we've been weaning her off and that will be her first offical drug free day! whoo! im also happy to report that hailyn is basically a full time walker! shes so adorable, she walks with her legs very far apart and her arms out, she slightly resemebles a very charming starfish.. hehe. We got two of hailyn's genetic tests back.. she was negative for CDG and Rhetts syndrome, again wonderful, but frustrating!! two years later and we're still at square one.. we're still waiting on the kreatine test but im sure that will be normal as well.. yay hailyn! =] My sister made an incredible recovery! She went home today!! i was so impressed! i cant wait to meet my nephew Grayson! he sounds very charming! =]
Eric's on duty tonight so im on my own til noon tommorw.. bummer! but hailyn and i have had lots of fun learning how to wash our hands like a big girl, and playing with dollies (or phenix in my case!) i also busted out the sewing machine during nap time, i had a few pants to repair so i did that.. i also began attaching the last peice to the beautiful quilt lisa gave me.. its perfect timing as the dog has totally torn our comforter apart.. i should have it done by monday! cant wait!
Eric also bought me a beautiful necklace for valentine's day.. its a glass pendant with a mom holding a baby painted in red.. its so beautiful! ill post pictures later on.. hope all is well with all of you! we appreciate all the prayers & support we've recieved!
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